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Canadian Congenital Heart Alliance

ACHD research the focus of this months edition of Canadian Journal of Cardiology

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ACHD focus in December edition of Canadian Journal of Cardiology

This month's edition of Canadian Journal of Cardiology focused on #ACHD research. Bravo and well done to all involved! @CJC_JCC  December 2019, Vol 35, Issue 12

https://www.onlinecjc.ca/current

 

The Future of Adult Congenital Heart Disease Research: Precision Health Services Delivery for the Next Decade  Ariane Marelli

Timing and Results of Pulmonary Valve Replacement for Pulmonary Regurgitation in Repaired Tetralogy of Fallot: A Challenge for Evidence-Based Medicine  Isabelle F. Vonder Muhll

Looking to the Left to Get It Right: Left Ventricular Systolic Dysfunction and Risk Stratification Late After Tetralogy of Fallot Repair  Rachel M. Wald, Erwin N. Oechslin

Fontan Circuit Thrombus in Adults: Often Silent, Rarely Innocent  Emilie Laflamme, S. Lucy Roche

Misperception of Survival in Adult Congenital Heart Disease and Importance of Both Anatomic and Functional Indices: Educate Your Patients!  Barbara Wichert-Schmitt, Erwin Oechslin

Transition and Transfer From Pediatric to Adult Congenital Heart Disease Care in Canada: Call For Strategic Implementation  Andrew S. Mackie, Anne Fournier, Lorna Swan, Ariane J. Marelli, Adrienne H. Kovacs

Congenital Heart Disease and Women’s Health Across the Life Span: Focus on Reproductive Issues  Kim Haberer, Candice K. Silversides

Eisenmenger Syndrome: A Multisystem Disorder—Do Not Destabilize the Balanced but Fragile Physiology  Marie-A. Chaix, Michael A. Gatzoulis, Gerhard-Paul Diller, Paul Khairy, Erwin N. Oechslin

Neurocognition in Adult Congenital Heart Disease: How to Monitor and Prevent Progressive Decline  Michelle Keir, Patricia Ebert, Adrienne H. Kovacs, Jonathan M.C. Smith, Emily Kwan, Thalia S. Field, Marie Brossard-Racine, Ariane Marelli

Non-Vitamin K Antagonist Oral Anticoagulants in Adult Congenital Heart Disease  François-Pierre Mongeon, Laurent Macle, Luc M. Beauchesne, Berto J. Bouma, Markus Schwerzmann, Barbara J.M. Mulder, Paul Khairy

Arrhythmias in Adults With Congenital Heart Disease: What the Practicing Cardiologist Needs to Know  Paul Khairy

Technological Advances in Arrhythmia Management Applied to Adults With Congenital Heart Disease  Blandine Mondésert, Krishnakumar Nair, Christopher J. McLeod, Paul Khairy

Heart Failure in Adult Congenital Heart Disease: From Advanced Therapies to End-of-Life Care  David S. Crossland, Alexander Van De Bruaene, Candice K. Silversides, Edward J. Hickey, S. Lucy Roche

Percutaneous Valve Interventions in the Adult Congenital Heart Disease Population: Emerging Technologies and Indications  Matthias Greutmann, Lee Benson, Candice K. Silversides

Cancer Risk in Congenital Heart Disease—What Is the Evidence?  Sarah Cohen, Michelle Z. Gurvitz, Virginie Beauséjour-Ladouceur, Patrick R. Lawler, Judith Therrien, Ariane J. Marelli

Animal Models of Repaired Tetralogy of Fallot: Current Applications and Future Perspectives  Estibaliz Valdeomillos, Zakaria Jalal, Alexandre Metras, François Roubertie, David Benoist, Olivier Bernus, Michel Haïssaguerre, Pierre Bordachar, Xavier Iriart, Jean-Benoit Thambo

Pulmonary Valve Replacement for Pulmonary Regurgitation in Adults With Tetralogy of Fallot: A Meta-analysis—A Report for the Writing Committee of the 2019 Update of the Canadian Cardiovascular Society Guidelines for the Management of Adults With Congenital Heart Disease  François-Pierre Mongeon, Walid Ben Ali, Paul Khairy, Ismail Bouhout, Judith Therrien, Rachel M. Wald, Frederic Dallaire, Pierre-Luc Bernier, Nancy Poirier, Annie Dore, Candice Silversides, Ariane Marelli

Left Ventricular Systolic Dysfunction and Cardiovascular Outcomes in Tetralogy of Fallot: Systematic Review and Meta-analysis  Alexander C. Egbe, Rosalyn Adigun, Vidhu Anand, Collin P. West, Victor M. Montori, Hassan M. Murad, Emmanuel Akintoye, Karim Osman, Heidi M. Connolly

Clinical Importance of Fontan Circuit Thrombus in the Adult Population: Significant Association With Increased Risk of Cardiovascular Events  Gnalini Sathananthan, Niall Johal, Tony Verma, Sherry Sandhu, Shantabanu Chakrabarti, Mounir Riahi, Derek Human, Jonathon Leipsic, Jasmine Grewal

Slower Skeletal Muscle Oxygenation Kinetics in Adults With Complex Congenital Heart Disease  Camilla Sandberg, Albert G. Crenshaw, Guilherme H. Elçadi, Christina Christersson, Joanna Hlebowicz, Ulf Thilén, Bengt Johansson

Right Ventricular Diastolic Function and Right Atrial Function and Their Relation With Exercise Capacity in Ebstein Anomaly  Yohei Akazawa, Tao Fujioka, Andreas Kühn, Wei Hui, Cameron Slorach, Christoph Roehlig, Luc Mertens, Manfred Vogt, Mark K. Friedberg

Severity Scores for Ebstein Anomaly: Credibility and Usefulness of Echocardiographic vs Magnetic Resonance Assessments of the Celermajer Index  Aleksandra Cieplucha, Olga Trojnarska, Agnieszka Bartczak-Rutkowska, Anna Kociemba, Justyna Rajewska-Tabor, Lucyna Kramer, Malgorzata Pyda

Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart Disease  Philip Moons, Koen Luyckx, Adrienne H. Kovacs, Christina E. Holbein, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A. Sluman, Hsiao-Ling Yang, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M. Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers on behalf of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD)

Protein-Losing Enteropathy Following Fontan Palliation  Asim Al Balushi, Andrew S. Mackie

ADHD Symptoms as a Potential Driver to Cannabis Use in Young Persons With Complex Congenital Heart Defects  Sandra Skogby, Ewa-Lena Bratt, Åsa Burström

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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