The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.
As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and complications.
Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page. For important informations, Q&A, resources...
The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).
CHD is the most common birth defect, affecting 1 in 100 babies born worldwide. CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...
We are excited to annouce the 1st Pan-Canadian Virtual Fontan Heart Camp: November 26, 2022: 9 am - 3 pm (MT) with Virtual Heart Connection!
Organized in association with the Pediatric Cardiology team at the Stollery Children's Hospital, Edmonton, AB.
The goal is to connect children who have had a Fontan operation to others similar to them through this FREE, 1-day event via fun activities such as games, arts & crafts, cookie decorating, Fontan testimonies and answering any questions you may have about your heart. You will receive an activity package to do together on the day prior to the...
The Canadian Fontan website is your one stop shop for all things Fontan related, whether you are a health care provider or living with Fontan. Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future.
The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!
The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. For 7 weeks now Canadians having been living through this COVID-19 pandemic. We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future. We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...
Today we celebrate 75 years since the first "blue baby" surgery by Alfred Blalock, with Helen Taussig and Vivien Thomas on November 29, 1944.
The child was 15-month-old, Eileen Saxon, the surgery was a success and she went home after 3 months. Unfortunately her cynotic episodes returned and 2 days before her 2nd birthday, she underwent another operation, she passed away 5 days later.
Now known as the BT or BTT shunt, the surgery was a success and really the start of #CHD surgery. We have come a long way since then, with an almost 95% survival rate into adulthood now.
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.