Canadian Congenital Heart Alliance

2021 Year in Review

You are here

2021 support for families living with heart defects and congenital heart disease


CCHA is excited to look back at some of our accomplishments this year. These accomplishments wouldn't be possible without generous donations and support from our CHD community, we thank you from the bottom of our hearts.

See how your support helps us achieve our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support for families living with heart defects.

Your support will help us continue to move forward with our mission – DONATE HERE


2021 House of Commons statement by Karen Vecchio (MP Elgin-London-Middlesex Deputy House Leader of the Official Opposition)

CHD Proclamations in 2021 -


2021 Light Canada Red for CHD Awareness -

Music with Heart: 1 in 100 Journey Virtual concert -


Mental Health Resources -

Advocacy resources -

Penelope children’s book -


CCHA continues to partner on CHD research across Canada, writing 4 Letters of Support and partnering on 2 research projects.

We also had an opportunity to provide input into the design of an adult patient survey for post procedure patients undergoing cardiac catheterization to understand their experiences and needs.We look forward to sharing the survey results when complete.  CCHA is proud to be a pillar partner in the Canadian Research Network for Adult Congenital Heart Disease Interventions (CRN-ACHDi) - the first Canadian national ACHD research network to bring together researchers, patients and caregivers, providers and decision makers to improve patient care through collaborative, innovative and highly translational research.

We continue our collaboration with CHEO Halo RI - Toolkit project- Impacting Child Physical and Mental Health Outcomes in Congenital Heart Disease: A Randomized, Controlled Trial of Enhanced Physical Activity Support in Clinical Care


CCHA Board members show support -

Beat Retreat camp -

CHD stories - and 2019 Faces of CHD


There are still time to show your support for families living with CHD. DONATE HERE

Other ways to give back – sign up to Volunteer with CCHA

Interact with us on Social media – Facebook , Twitter and Instagram

About the Author

No bio available.
Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.


Sorry, there are no posts at this time.