Canadian Congenital Heart Alliance

Lost To Care

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If you are an adult and have fallen out of care with an adult CHD cardiologist, you are not alone.

There are over 165,000 adults in Canada living with CHD. It's estimated as high as 77% have been 'lost to care', meaning they are not being followed by a specialized adult congenital heart disease (ACHD) cardiologist. 

To find the closest ACHD clinic near you and get back into care, use our ACHD clinic locator

Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!


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