Canadian Congenital Heart Alliance

Current CHD research project

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The following CHD research projects are currently open and actively recruiting participants. Please find the eligibility requirements and directions to participate for each separate study below;

Wellbeing and wellbeing protective factors of parents study

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Link to survey: https://uregina.eu.qualtrics.com/jfe/form/SV_cM97F11TM64Ezoq

Research study regarding the wellbeing and wellbeing protective factors of parents of healthy children between the ages of 0-4 and parents of children with congenital heart disease (CHD) between the ages of 0-4. I am writing to invite you to participate in my study which can be accessed by following the link provided below.

To participate in this study, you must be living in Canada, be able to read in English, be above 18 years of age, and have at least one healthy child between the ages of 0-4 or one child with CHD between the ages of 0-4. This study has been approved by the Research Ethics Board at the University of Regina. If you know someone else who may be interested in participating in this study, please feel free to forward this post to them, but do not provide us with their information.

The study consists of a questionnaire regarding you and your child’s demographic information, your wellbeing, and other factors that may be associated with your wellbeing. Participation will take 30-45 minutes. You will be entered into a draw for 1 of 3 $50 Amazon gift cards as a thank you for your participation. For additional information please contact myself at dmc384@uregina.ca or my supervisor, Dr. Kristi Wright, Registered Doctoral Psychologist at Kristi.wright@uregina.ca.

Although we have asked CCHA to share information about our study with you, they are not involved in the study whatsoever. They will not be informed whether or not you chose to participate in the study. If you do choose to participate in the study, your organization will not have access to any of the information you share. Your current or future care/services will not be impacted in any way regardless of whether or not you chose to participate in this research opportunity.

Link to survey: https://uregina.eu.qualtrics.com/jfe/form/SV_cM97F11TM64Ezoq

Danielle Caissie, M.Sc.

Principal Investigator

Doctoral Student in Clinical Psychology

University of Regina

Email: dmc384@uregina.ca

 

Dr. Kristi D. Wright, R. D. Psych. 

Professor

Department of Psychology

University of Regina

3737 Wascana Parkway

Regina SK S4S 0A2

Phone: (306) 585-4180

Email: kristi.wright@uregina.ca

Impact of CHEO Active Website Study

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The Children's Hospital of Eastern Ontario (CHEO) Active website has over 1,000 activities to promote health active living, matched to appropriate activities for each child!

Try our website for 1 month and send us your feedback by completing a quick survey. As a thank you, you will have continued access to the website.

To Join or Learn more, contact CHEO at cheoactive@cheo.on.ca or (613) 737-7600 ext. 3908

 

Delirium Study

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Does your CHD child suffer from delirium? Researchers at Nationwide Children's Hospital (Ohio, USA) are looking to hear from parents, grandparents, or caregivers of children with heart disease who have developed symptoms of delirium. This study has been approved by the Nationwide Children's Institutional Review Board (IRB) and aims to reach caregivers of children with CHD internationally.

To help us better understand your experience, please click on this link to complete the research survey. https://redcap.link/p_pod

Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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