Canadian Congenital Heart Alliance

#ACHD

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jennifer
July 25, 2023
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Beat Retreat, heart, heart disease, ACHD, CHD, heart defect, congenital heart defect, congenital heart disease, 1 in100, camp, disability, archery, canoeing. health

Registration is now open is cancelled for 2023!

Unfortunatey the 2023 Beat Retreat camp has been cancelled due to low applications. However, we will be holding camp in 2024 so keep watch for more details this fall. 

Don't miss out on the opportunity to see old friends and make new ones!

The Canadian Congenital Heart Alliance (CCHA) along with the Beat Retreat is happy to present the 14th annual Beat Retreat camp September 7-10, 2023. 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an...

News
jennifer
October 6, 2022
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heart, heart disease, heart defect, survey, Canada, heart health, healthcare, health access, health equity, cardiac, congenital heart, congenital heart disease, congenital heart defect, feedback

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This survey is now closed.

Thank you for participating in this important survey on access to congenital heart disease care in Canada

https://www.surveymonkey.ca/r/QYQXGC3

A CHD national advisory committee (CHD-NAC) has been convened to collaboratively lead the development of a Canadian CHD strategy and implementation of a CHD action plan. Lead by Heart & Stroke, the CHD-NAC consists of a core group of strategic leaders representing, The Canadian Pediatric Cardiology Association, Canadian Adult Congenital Heart Network, Canadian Cardiovascular Society, Canadian Congenital Heart...

News
jennifer
November 19, 2021
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fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market

 

Welcome to the 2021 virtual Holiay Market in support of CCHA acheiving our mission to advocate for and enrich the lives of people living with Congenital Heart Disease (CHD) through awareness, education, research and support.

This year we have 7 vendors participating, be sure to check often for deals and special offers!

Join the FB market https://www.facebook.com/groups/415193386162756 or use the links below to shop.

Thank you for your support of small business and CCHA.

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Pampered Chef - Robbyn McLellan - bit.ly/PamperedChefCCHA

 

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Scentsy - Tamara Sasseville - bit.ly/ScentsyPartyCCHA

fundraiser, heart defects, heart disease, charity, CHD, small business, holiday shopping, buy Canadian, virtual market, buy local  Thirty-one...

News
jennifer
January 28, 2021
0
Sad man with a beard and beanie looking out a window

Image by StockSnap from Pixabay

In October 2020 CCHA in partnership with MacEwan Nurs 424 students conducted a Mental Health survey for Canadians living with CHD. The survey results indicated that an astonishing 88% of adults living with CHD said they had experienced mental health challenges at some point.

As a result, CCHA has compiled a list of mental health resources across Canada, they can be accessed at https://www.cchaforlife.org/mental-health-resources

 

 

News
jennifer
January 27, 2021
0
Canadian Fontan Website and Registry
 
Welcome to your one stop shop for all things Fontan related, whether you are a health care provider or patient.
Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future. #CanadianFontan
 

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

To register for the 2023 Fontan Education Day on April 16,

News
jennifer
December 1, 2020
0
Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

News
jennifer
October 29, 2020
0
Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

News
jennifer
June 28, 2020
0
Beat Retreat returns to CCHA

Exciting announcement from CCHA and Beat Retreat

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver “The Beat Retreat” camp.

This fun-filled four day event for adults living with congenital heart disease (CHD) will return as a program under the Canadian Congenital Heart Alliance known as the “The Beat Retreat”.

With the Beat Retreat returning as a program of CCHA, it will ensure continued financial support for the camp, allowing for stable and long term growth.  “We are...

News
jennifer
June 12, 2020
0
Walk of Life 2020

 

Join Team CCHA in the 2020 Virtual Walk of Life! https://bit.ly/WOL2020TeamCCHA

The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE!  Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:

  • Awareness materials
  • Camps
  • Conferences
  • Education days 
  • Support initiatives such as Transition Programs, and more!

You will also be supporting...

News
jennifer
June 11, 2020
0
Stay home save lives COVID19

 

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.

As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and
complications.

Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page.  For important informations, Q&A, resources...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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