The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance. We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation. The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...
In October 2020 CCHA in partnership with MacEwan Nurs 424 students conducted a Mental Health survey for Canadians living with CHD. The survey results indicated that an astonishing 88% of adults living with CHD said they had experienced mental health challenges at some point.
Welcome to your one stop shop for all things Fontan related, whether you are a health care provider or patient.
Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future. #CanadianFontan
The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!
See why our Board Members support CCHA and its mission.
I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...
Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools. Survey closes November 16, 2020.
The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE! Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:
Support initiatives such as Transition Programs, and more!
The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.
As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and complications.
Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page. For important informations, Q&A, resources...
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.