Canadian Congenital Heart Alliance

#CHDAwarenessWeek

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

Happy Heart Month 2022 from the Canadian Congenital Heart Alliance (CCHA)!

This year our Heart Month campaign focuses on the number four - 4 chambers in the heart; 4 weeks in February; 4 values in our mission. We advocate for and enrich the lives of people with congenital heart disease (CHD) through awareness, education, research and support. And this month, we've got a line-up of engaging events and campaigns 4 you!

This month we will make announcements, introduce #hastag challenges, launch new resources, and host family activities and more. Stay tuned to see how we have #CanadaLitRed4CHD to...

Illustration of Penelope

The Canadian Congenital Heart Alliance launched their children's book "Penelope goes for her heart checkup" in February 2021.

This illustrated book for children ages 5-8, follows Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before their ‘heart checkup’ will assist in preparing them for their visit with the 'Heart Team'.

The book includes 2 colouring activity pages to help your child engage with Penelope on her journey. Download here PDF icon Download Penelope and her Heart Team colouring page.pdf (180.32 KB)

Some...

MP Marilyn Gladu recognizes February 14th as CHD Awareness Day in Statement in House of Commons

 

Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.

By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.

Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition

2019 Faces of CHD campaign

During Heart Month 2019, we highlighted CHD stories of our members from across Canada. Thank to everyone for their stories of strength, perseverance and hope and for sharing their experience with the community of CCHA and anyone who has been touched by Congenital Heart Disease.

 

Meaghan S' story  Meaghan S' Faces of CHD story  PDF icon Download Meaghan S_Faces of CHD story.pdf (76.53 KB)

 

Rita F's story  Rita's Faces of CHD story  PDF icon Download Rita F_Faces of CHD story.pdf (72.09 KB)

 

Michelle K's story Faces of CHD Michelle's story   PDF icon Download Michelle K_Faces of CHD story.pdf (1.02 MB)

Amanda C's story CCHA Faces of CHD in Canada - Amanda  PDF icon Download Amanda C_Faces of CHD story.pdf (837.88 KB)

Shelley C's...

By Sarah Trainor, CBC

"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.

A great piece for generating awareness during...

Congratulations to Nova Scotia for being the first province to declare February 7 - 14th Congenital Heart Disease Awareness Week! Way to go!

Big thanks @Brave_HeartSS @yarrowgillis @BrigadonTweets @IWKHealthCentre and everyone involved to raise awareness for CHD and make this happen.

 

 

Thank you to Marilyn Gladu, MP (Sarnia_Lambton, ON Opposition Health Critic) for reading our statement in the House of Commons and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada.

 

https://www.facebook.com/MPMarilynGladu/videos/920094518165380/

Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

Read our stories of strength, perseverance and hope

Our Faces of CHD campaign from 2019 Heart Month https://www.cchaforlife.org/news/faces-chd

Sarah Trainor, via CBC (parent of CHD child)

John MacEachern (Discovering cardiac rehab at age 74)

Joe Bladek (Tetralogy of Fallot)

Anne-Marie Koeslag (Tricuspid atresia)

Emily Clarke (Transposition of the great arteries and tetralogy of Fallot)

Toby Marchegiano (complex congenital heart disease)

Shelagh Ross (Tetralogy of Fallot)

Mathew Moreira (Tricuspid artresia)

Carol Allan (Tetralogy of Fallot)

Angela Akerman (Complex congenital heart disease...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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