Canadian Congenital Heart Alliance

#CHD

Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

Illustration of Penelope

 

The Canadian Congenital Heart Alliance is thrilled to announce the launch of a children's book "Penelope goes for her heart checkup".

Follow Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’ with her Heart Team in this beautifully illustrated book for children ages 5-8. 

To learn more and download the book visit https://www.cchaforlife.org/penelope-goes-her-heart-checkup

KIDS ACTIVITY ALERT!!!  To be a part of Penelope's journey, download the colouring page below. Colour Penelope and her Heart Team and take a pic of the completed colouring page, tag us...

Canadian flag

    City of Edmonton Proclaiming CHD Awareness Week  City of Calgary Proclaiming CHD Awareness Week  City of Chestermere Proclaiming CHD Awareness Week

Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.

Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at info@cchaforlife.org to get involved!

 

Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales

Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...

CN Tower lit red

Iconic buildings all across Canada are lighting up red for CHD Awareness Week!

Feb 7 - High Level Bridge - Edmonton AB https://www.edmonton.ca/attractions_events/schedule_festivals_events/lig...

Feb 7 - BC Place - Vancouver BC  https://www.facebook.com/BCPlaceStadium/posts/5594016120624553

Feb 9 - Calgary Tower - Calgary AB  https://www.calgarytower.com/about/light-shows/lighting-schedules/

Feb 12-14 - London City Hall, JA Taylor building, Canada Life building and RBC Place Convention Centre - London ON

Feb 14 - CN Tower - Toronto ON https://www.cntower.ca/en-ca/home.html#earthcams

Feb...

Images for family doing Trivia Night, children doing Scavenger Hunt and Person playing guitar for virtual concert

CCHA is thrilled to announce three exciting virtual events to raise CHD Awareness during Heart Month.

Congenital heart defects affect 1 in 100 births and is the most common birth defect. Congenital Heart Disease is a lifelong illness requiring specialized cardiac care.

VIRTUAL CONCERT

When:     Sunday February 28 at 7:00 - 8:30pm EST

Where:    Online event

Who:       4 talented musicians including Jake Ohanian, Russ Matthews, Tyler Mullendore

What:     Virtual Live concert. (to see our first concert visit https://www.cchaforlife.org/news/music-hearts-1-100-journey-virtual-concert)

Why:      To promote Congenital...

Sad man with a beard and beanie looking out a window

Image by StockSnap from Pixabay

In October 2020 CCHA in partnership with MacEwan Nurs 424 students conducted a Mental Health survey for Canadians living with CHD. The survey results indicated that an astonishing 88% of adults living with CHD said they had experienced mental health challenges at some point.

As a result, CCHA has compiled a list of mental health resources across Canada, they can be accessed at https://www.cchaforlife.org/mental-health-resources

 

 

Canadian Fontan Website and Registry
 
Welcome to your one stop shop for all things Fontan related, whether you are a health care provider or patient.
Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future. #CanadianFontan
 

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

 

 

CCHA year in review

Although 2020 was a tough year for us all, we at CCHA are looking back fondly on some of the incredible work we were able to do to enrich the lives of our CHD community members. Thank you to all our donors, members and volunteers who made it all possible!

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We are looking forward to all that is in store for 2021.

Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

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