Canadian Congenital Heart Alliance

#CHD

Annual Labatt Family Heart Centre Family Conference 2017

Saturday April 22, 2017 8:30am to 4pm

Peter Gilgan Centre for Research and Learning (PGCRL) at 686 Bay St, Toronto

This conference brings children, their families and health professionals together to share information and experiences about heart disease in children. The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development or informal support systems.

Click here to see the agenda http://www.cvent.com/events/annual-labatt-family-heart-centre-family-con...

Come by and...

Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

New Fearless Physical Activity events have finished for the summer, thanks to everyone who came out!  Check back here in the fall for new dates and locations.

From 2016 to 2018 the Canadian Congenital Heart Alliance (CCHA) partnered with CHEO's HALO Research Institute, and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) across Ontario through funding from the Province of Ontario. Each season, Fearless Physical Activity events were held in London, Ottawa, Thunder Bay or Sudbury...

'Fearless' Physical Activity

The Canadian Congenital Heart Alliance (CCHA) is thrilled to announce they are the successful recipients of a grant from the Ontario Ministry of Tourism, Culture and Sport. This grant will fund a comprehensive, ground-breaking two-year study – ‘Fearless Physical Activity’ - to support the delivery of high-quality, meaningful physical activities for children, youth and adults with congenital heart disease (CHD) and their families.

Thanks to an Ontario Sport and Recreation Communities Fund grant of $186,934, this unique project, in collaboration with Dr. Pat Longmuir of the Healthy Active...

Read our stories of strength, perseverance and hope

Our Faces of CHD campaign from 2019 Heart Month https://www.cchaforlife.org/news/faces-chd

Sarah Trainor, via CBC (parent of CHD child)

John MacEachern (Discovering cardiac rehab at age 74)

Joe Bladek (Tetralogy of Fallot)

Anne-Marie Koeslag (Tricuspid atresia)

Emily Clarke (Transposition of the great arteries and tetralogy of Fallot)

Toby Marchegiano (complex congenital heart disease)

Shelagh Ross (Tetralogy of Fallot)

Mathew Moreira (Tricuspid artresia)

Carol Allan (Tetralogy of Fallot)

Angela Akerman (Complex congenital heart disease...

 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day weekend for adults with congenital heart disease. You’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of other CHD patients. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a weekend of fun, friends, firsts, and great food.    

A picture is worth a 1,000 words.

Check our...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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