The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE! Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:
Support initiatives such as Transition Programs, and more!
The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.
As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and complications.
Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page. For important informations, Q&A, resources...
We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!
The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).
CHD is the most common birth defect, affecting 1 in 100 babies born worldwide. CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...
The Canadian Congenital Heart Alliance is excited to launch a children's book "Penelope goes for her heart checkup".
This illustrated book for children ages 5-8 , follows Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before their ‘heart checkup’ will assist in preparing them for their appointment.
It also includes a colouring activity to engage children as they interact with Penelope's journey. Along with your child, you can follow Penelope and she and her mother visit the ‘Heart Team’.
For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.
What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...
Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.
CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.
88% of adults living with #CHD have experienced mental health challenges at some point.
75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?