The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE! Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:
Support initiatives such as Transition Programs, and more!
We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!
The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).
CHD is the most common birth defect, affecting 1 in 100 babies born worldwide. CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...
The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to build life-long frienships, share and learn from the experiences of others living with CHD. And, you’ll have an opportunity to chat with healthcare professionals in a relaxed and informal...
The purpose of these transition recommendations is to support families understand the stages of Transition and support discussions with your CHD healthcare team. Transition should be personalized for each individual, in accordance with their chronological age, developmental stage and abilities. Active engagement in the transition process is vital for teens and young adults and families to prepare for a healthy life as an adult with CHD
Introduction to Health: Age 2-7 years old
Goal - Understanding their body
Transition preparation begins when your child is a toddler; coach them to...
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.