During 2019 Heart Awareness Month, we will be highlighting CHD stories of our members.
Our next Faces of CHD story is about Rita. You can read Rita's story below. For previous stories, see bottom of page.
Rita from Lethbridge, AB
CHD diagnosis: Tetralogy of Fallot
I was born January 1970 in Lethbridge, AB. Within one week I was diagnosed with a heart murmur, and by one month of age, referred to Dr. R. Sommerville in Calgary, AB. I was diagnosed with Tetralogy of Fallot. At around four months of age, I had my first surgery, by in Vancouver BC. In 1978, I went back to Vancouver for...
Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.
By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.
Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition
Aiden's Prime Minister of Canada for a Day Wish Granted
Aiden Anderson, a 15 year old from London, ON finally had his Make A Wish granted this week. Aiden has had a passion for politics since he was in Grade 7 when he first made his wish. Aiden and his family are members of CCHA and part of our Hearts of London/Middlesex chapter in London ON.
This week Aiden's wish came true with an incredible once in a lifetime experience thanks to Make A Wish Eastern Ontario and Make a Wish Southern Ontario. His 4 day journey included
Study testing high-dose influenza vaccine in high-risk ACHD patients.
A North American INVESTED study will test the hypothesis that high dose trivalent influenza vaccine will reduce cardiopulmonary events to a greater extent than standard dose quadrivalent influenza vaccine in high-risk cardiovascular patients with a recent history of myocardial infarction or heart failure. An ACHD sub-study will investigate the effects on ACHD population.
Already received the influenza vaccine this year, you are not eligible to participate this year. However, you can still contact the...
Here is a sneak peek at the upcoming collaborative article on medical treatment and care of adults with Congenital Heart Disease in Canada. Thrilled to be part of this great collaborative research team lead by Dr. Jennifer Lapum at Ryerson University; and included Dr. Suzanne Fredericks also at Ryerson University, Barbara Bailey and Dr. Terrence Yau at Peter Munk Cardiac Centre, Dr. Ariane Marelli at McGill University Health Centre and our own Jennifer Graham at Canadian Congenital Heart Alliance.
We are honoured to be named feature charity of the month by First Edition First Aid Training!
Thank you for recognizing our organization and the hard work we do to support children and adults in Canada living with congenital heart disease #CHD through education, research and advocacy. Your recognition helps to shine a spotlight on Congenital Heart Disease and increase CHD awareness.
Toronto (September 20, 2018) – In a remarkable new genetic discovery, researchers at the Peter Munk Cardiac Centre, University Health Network (UHN), Ted Rogers Centre for Heart Research and The Hospital for Sick Children (SickKids) have found strong evidence that rare DNA variations can lead to Tetralogy of Fallot (ToF).
"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.