#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.
Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.
Karen Vecchio, MP is Deputy House Leader of the Official Opposition.
Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.
Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at firstname.lastname@example.org to get involved!
Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales
Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...
Welcome to your one stop shop for all things Fontan related, whether you are a health care provider or patient.
Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future. #CanadianFontan
The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!
See why our Board Members support CCHA and its mission.
I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...
For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.
What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...
Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.
CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.
88% of adults living with #CHD have experienced mental health challenges at some point.
75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?
December 12, 2020 Postion paper from the ESC working group of Adult Congenital Heart Disease and the International Society for Adult Congenital Heart Disease.published in Eurpoean Heart Journal. https://doi.org/10.1093/eurheartj/ehaa960
The paper discusses the broad impact of COVID-19 on ACHD patients, focusing specifically on pathophysiology, risk stratification for work, self-isolation, hospitalization, impact on pregnancy, psychosocial health, and longer-term implications for the provision of ACHD care.
Figure 1 illustrated the non-ACHD risk factors and as well as categorizes risk for ACHD...
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.