Canadian Congenital Heart Alliance

CHD

heart, heart disease, health health, CHD, heart defect, healthy living, exercise, website, ASD, VSD, fontan, ohs, heart surgery

Registration is now open for the 2024 Beat Retreat camp!

Date: September 12-15, 2024

Beat Retreat is a fun-filled, four-day weekend for adults living with Congenital Heart Disease (CHD). At Beat Retreat you’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of others like you livng with CHD. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a...

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Join us for our annual Virtual Heart camp on November 23, 2024 organized by the Virtual Heart Connection and CCHA.

Previously for Fontan kids, this year it is open to all kids 7-16 years with any type of congenital heart disease so they can connect with others like them.

For more info and to register, click here: https://forms.gle/tvLcXKCH7fQGNHAM8
 

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Joignez-vous à The Virtual Heart Connection et l'ACCC pour notre Camp Virtuel Coeur Congénital le 23 novembre 2024.

Auparavant ce camp visait les enfants qui avaient des Fontans mais cette année il est ouvert à tous les enfants atteints de n...

heart, congenital heart disease, heart disease, heart defect, congenital heart defect, heart surgery, open heart surgery,

Virtual Congenital Heart Choir

Are you a child living with congenital heart disease in Canada? Do you like to sing? Are you looking for something fun to do inside over the long Canadian Winter?

Why not join our CHD children's choir! Brought to you by musicians from the Virtual Heart Connection (VHC) in association with the Canadian Congenital Heart Alliance (CCHA), you will learn a medley of songs and sing together with other CHD kids.

Sessions will start with vocal warm-up exercises followed by learning the song. Participants will have an optional chat time with each other at the end...

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

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This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

heart, heart disease, heart defect, heart health, healthy living, congenital heart, congenital heart defect, CHD, board, board of directors, volunteer

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

Happy Heart Month 2022 from the Canadian Congenital Heart Alliance (CCHA)!

This year our Heart Month campaign focuses on the number four - 4 chambers in the heart; 4 weeks in February; 4 values in our mission. We advocate for and enrich the lives of people with congenital heart disease (CHD) through awareness, education, research and support. And this month, we've got a line-up of engaging events and campaigns 4 you!

This month we will make announcements, introduce #hastag challenges, launch new resources, and host family activities and more. Stay tuned to see how we have #CanadaLitRed4CHD to...

Heart Defect, heart disease, virtual camp, Fontan, congenital heart disease, CHD

 

CCHA is pleased to partner with Virtual Heart Connection for their 2nd annual Virtual Fontan Heart Camp. 

To register https://forms.gle/W8rgkjNAzpAX5wVW6

Event Date: Saturday, February 26, 2022
Event Time: 9am – 3pm (Mountain Time)
Event Agenda: View Agenda Here
Event Location: Online
Eligibility: Children between the ages of 8-15 who had Fontan surgery and are followed by a cardiologist anywhere in Canada!
RSVP EXTENDED! Register by January 22, 2022 – Space is Limited!

Event Description

Join us on Saturday, February 26, 2022 from 9am – 3pm (Mountain Time)
for the second Western Canadian...

Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, heart health, heart surgery, pregnancy, heart condition, OHS, VSD, ASD, hole in heart

FR

CCHA is excited to announce our newest project -  CHD Unpacked: A podcast about living with Congenital Heart Disease.

This podcast is a safe space to discuss the well-being, lifestyle, psychosocial impacts and unique medical challenges faced by those living with Congenital Heart Disease (CHD). Our episodes will feature physicians, researchers and allied healthcare workers and experts in the field of CHD, as well as those with lived experience.

Be sure to check in the first Friday of each month when we launch a new episode. Some months we will have a bonus episode released on the third Friday...

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