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Canadian Congenital Heart Alliance

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Snow covered red wooden hearts in the forest surrounded by holiday market vendor logos

 

Have you started your Holiday shopping yet? It is about to be that wonderful time of the year!  But this year you can not only find that special item but you can support the Canadian Congenital Heart* Alliance too!   

CCHA is holding a 'Virtual Holiday Market'  beginning November 9, 2020 and will feature seven wonderful vendors. Each will showcase their products over the next week and a percentage of sales will be donated to the CCHA.

Vendors will share products, gift ideas, sales and more!
Pampered Chef, Norwex, GelMoment Nails, Monat, Scentsy, Thirty-one and Stella and Dot.

To join the market...

CHD Awareness concert - crowd at concert with hands in heart shape

 

CCHA was LIVE with a virtual concert to raise CHD AWARENESS

 

One of CCHA's goals as an organization is RAISE AWARENESS of CHD! As a way to achieve our goal, on November 22nd at 5:30pm EST/6:30pm AST, we teamed up with a group of students from Saint Francis Xavier University to host a FACEBOOK LIVE Concert – Music With Hearts; 1 in 100 Journey!!

 

This event featured some great East Coast talent such as Russ Matthews, Tyler Mullendore, Todd Googoo, and many more! We also have some wonderful talent from individuals who live with CHD such as Shannon Durnan and Joe Bladek!! Also Kyle Tayes and...

Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

Beat Retreat returns to CCHA

Exciting announcement from CCHA and Beat Retreat

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver “The Beat Retreat” camp.

This fun-filled four day event for adults living with congenital heart disease (CHD) will return as a program under the Canadian Congenital Heart Alliance known as the “The Beat Retreat”.

With the Beat Retreat returning as a program of CCHA, it will ensure continued financial support for the camp, allowing for stable and long term growth.  “We are...

Walk of Life 2020

 

Join Team CCHA in the 2020 Virtual Walk of Life! https://bit.ly/WOL2020TeamCCHA

The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE!  Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:

  • Awareness materials
  • Camps
  • Conferences
  • Education days 
  • Support initiatives such as Transition Programs, and more!

You will also be supporting...

Stay home save lives COVID19

 

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.

As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and
complications.


Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page.  For important informations, Q&A, resources...

Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Congenital Heart Disease journal ceases publication

 

IMPORTANT INFORMATION FROM DR.DOUG MOODIE (EDITOR-IN-CHIEF) ABOUT THE DISCONTINUATION OF THE JOURNAL “CONGENITAL HEART DISEASE”

Congenital Heart Disease journal ceases publication

Send your feedback and let Wiley Blackwell publications know that this Journal is vital to the CHD professional community. 

On Social Media: @WileyNews

CHIP is funded by the community. Your donations and sponsorships help your community stay informed and connected.
 

 

Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

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Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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