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Canadian Congenital Heart Alliance

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Take our survey

In September 2018, the CCHA board will be meeting to develop their 3 year strategic plan. We would like to hear feedback from the CHD community. 

Please give us your thoughts and input on how you would like to see CCHA support our members and CHD across Canada. Survey closes September 19, 2018.

SURVEY  http://bit.ly/2n3pcb1

 

The Canadian Congenital Heart Alliance (CCHA) partnered with the CHEO's HALO Research Institute and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) held across Ontario in 2017.

Interested in Fearless Physical Activity? Check out our resources here Fearless Physical Activity

 

Funding provided through a grant from the Ontario Ministry of Tourism, Culture and Sport

 

Organ donations help save lives.
 
“Every week 5 Canadians die while waiting for a transplant. Yet, a single donor can save up to 8 lives through their organs, and save or heal more than 100 lives through tissue donation.”
 
Click the link below for more details on how you can help change organ registration system and help save lives.
 
To register for organ donation or for more information, visit https://www.canada.ca/en/public-health/services/healthy-living/blood-organ-tissue-donation.html#a2 and select your...

Have you heard of the Great Canadian Giving Challenge? It is a national public contest to benefit any registered Canadian charity. Every $1 donated to a registered charity in June, automatically enters the charity to win an additional $10,000 donation. The grand prize draw is on Canada Day and one lucky charity will receive the grand prize of $10,000. 

Donate Here

Did the Great Canadian Giving Challenge make a difference last year? In 2017, the third annual Great Canadian Giving Challenge, 77,785 Canadians participated, donating almost $10 million to over 10,000 charities, representing an...

 

AGM documents and attendance details are available on CCHA website.

Find info at https://www.cchaforlife.org/2018-agm

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

 

JOIN TEAM CCHA IN THE 2018 WALK OF LIFE®

Join or Donate to Team CCHA: https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx?teamID=79750...

 

Saturday, May 26, 2018 8:00 am - 12:00 pm

Ontario Science Centre, 770 Don Mills Road & E.T. Seton Park (Sunnybrook Parkland)

FREE Parking, T-Shirt, snacks, beverages and BBQ, bouncy castles

Free registration for kids under 14

*** This year Team CCHA will have our own personalized T-shirts. Be sure to pick them up when you register!

 

Host: Roger Petersen

Mascots: PAW PATROL

Musical Entertainment: Andy B. and the Honey Tones

 

SCHEDULE OF EVENTS...

 

TRASE study: Young adults (15-30 yo) with #CHD or parents of young adults with CHD needed for transition readiness study!
Contact TRASE.Study@childrens.harvard.edu Open to

 

 

 

Tamarack Ottawa Race Weekend in support of CCHA

Saturday, May 26 at 2 PM - 7 PM
Downtown Ottawa


 

CCHA will have a team participating and fundraising. There is a 2km, 5km, 10km, half marathon and full marathon
option.

Join our teamhttps://secure.e2rm.com/registrant/EventHome.aspx?eventid=226965&langpre...

Donate to our teamhttps://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=4012085&langPref=en-CA#&panel1-1

 

We will also have a booth at the Health and Fitness Expo which runs Thursday-Saturday.

Volunteer: contact Jennifer at...

The Agenda on TVOThe Agenda on TVO

*photo from TheAgenda/TVO website/Liane Kotler-Producer

 

TVO Interview: https://tvo.org/video/programs/the-agenda-with-steve-paikin/congenital-c...

Do you know what the # 1 birth defect is in Canada? Congenital heart disease (CHD).

On Tuesday, February 27 on ‘The Agenda’ - TV Ontario, there was a panel discussion focusing on congenital heart disease. Viewers heard more about the #1 birth defect - which affects about 1/100 births. Guests included

Dr. Erwin N. Oechslin, director at the Congenital Cardiac Centre for Adults located at the Peter Munk Cardiac Centre, University Health Network...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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