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Canadian Congenital Heart Alliance

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MP Marilyn Gladu recognizes February 14th as CHD Awareness Day in Statement in House of Commons

 

Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.

By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.

Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition

During 2019 Heart Awareness Month, we will be highlighting CHD stories of our members.

Our next Faces of CHD story is about Rita. You can read Rita's story below. For previous stories, see bottom of page.

Faces of CHD_ Rita              

Rita from Lethbridge, AB

Age: 49

CHD diagnosis:  Tetralogy of Fallot

I was born January 1970 in Lethbridge, AB.  Within one week I was diagnosed with a heart murmur, and by one month of age, referred to Dr. R. Sommerville in Calgary, AB. I was diagnosed with Tetralogy of Fallot.  At around four months of age, I had my first surgery, by in Vancouver BC. In 1978, I went back to Vancouver for...

Fearless physical activity event

A new Fearless Physical Activity event has been scheduled for Ottawa!

Sunday June 16 2-5pm

Bonnenfant Y Outdoor Education and Leadership Centre

1620 6th Line Road, RR#1 Dunrobin, ON

To register visit:  https://www.cchaforlife.org/webforms/fearless-physical-activity-registra...

Come out and join the fun at our Fearless Physical Activity event. These events are to education children and adults and their families about physical activity and exercise while living with congenital heart disease (CHD). They are held across Ontario in London, Ottawa, Thunder Bay or Sudbury and Toronto for all ages and...

Team CCHA in 2019 Walk of Life

JOIN TEAM CCHA IN THE 2019 WALK OF LIFE®

This year we celebrate our 10th year participating in the Walk of Life.  To date Team CCHA has raised over $83,000 to help fund important programs such as CHD Patient Education Days, camp programs, 1st Paediatric Exercise Medicine Room and Cardiac Rehab Program for kids and adolescents in Canada at The Hospital for Sick Children.                    Join Team CCHA and help us reach our goal to raise over $100,000 in 10 years!

To Join or Donate to Team CCHA use this link: Team CCHA

WHEN:   Saturday, May 25, 2019 8:00 am - 12:00 pm

WHERE:   Ontario Science Centre, 770 Don Mills...

Board of Directors positions available

 

Board of Director Positions Available
The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical positions on our national Board of Directors, the elected group of volunteers who support the work of CCHA and provide mission-based leadership and strategic governance.

The CCHA is a volunteer-run charity. Our mission is to improve the quality of life and health outcomes for individuals with congenital heart disease (CHD) by raising awareness, providing peer support and mentoring, advocacy, and advancing research.

The CCHA’s Nominating Committee...

Invested Influenza ACHD trial

Study testing high-dose influenza vaccine in high-risk ACHD patients.

A North American INVESTED study will test the hypothesis that high dose trivalent influenza vaccine will reduce cardiopulmonary events to a greater extent than standard dose quadrivalent influenza vaccine in high-risk cardiovascular patients with a recent history of myocardial infarction or heart failure.  An ACHD sub-study will investigate the effects on ACHD population.

Eligibility Criteria

INVESTED eligibility criteria

Already received the influenza vaccine this year, you are not eligible to participate this year.  However, you can still contact the...

Here is a sneak peek at the upcoming collaborative article on medical treatment and care of adults with Congenital Heart Disease in Canada.  Thrilled to be part of this great collaborative research team lead by Dr. Jennifer Lapum at Ryerson University; and included Dr. Suzanne Fredericks also at Ryerson University, Barbara Bailey and Dr. Terrence Yau at Peter Munk Cardiac Centre, Dr. Ariane Marelli at McGill University Health Centre and our own Jennifer Graham at Canadian Congenital Heart Alliance. 

http://bit.ly/2PDQ6Xs

Looking forward to the full article to be published in journal Congenital...

CCHA Named Feature Charity of the Month

We are honoured to be named feature charity of the month by First Edition First Aid Training!

Thank you for recognizing our organization and the hard work we do to support children and adults in Canada living with congenital heart disease #CHD through education, research and advocacy.  Your recognition helps to shine a spotlight on Congenital Heart Disease and increase CHD awareness.

To read the full article visit:  http://bit.ly/2Km34Dm

Major milestone in the genetic research for CHD.

 

Toronto (September 20, 2018) – In a remarkable new genetic discovery, researchers at the Peter Munk Cardiac Centre, University Health Network (UHN), Ted Rogers Centre for Heart Research and The Hospital for Sick Children (SickKids) have found strong evidence that rare DNA variations can lead to Tetralogy of Fallot (ToF).

Published in Genetics in Medicine, ...

To read the full article https://www.uhn.ca/corporate/News/PressReleases/Pages/pioneering_genome_...

Organ donations help save lives.
 
“Every week 5 Canadians die while waiting for a transplant. Yet, a single donor can save up to 8 lives through their organs, and save or heal more than 100 lives through tissue donation.”
 
Click the link below for more details on how you can help change organ registration system and help save lives.
 
To register for organ donation or for more information, visit https://www.canada.ca/en/public-health/services/healthy-living/blood-organ-tissue-donation.html#a2 and select your...

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Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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