Canadian Congenital Heart Alliance

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jennifer
April 13, 2024
0
heart, heart disease, health health, CHD, heart defect, healthy living, exercise, fundriaser, chairty, website, ASD, VSD, fontan, tetrology, PFO, coartation, aorta, ventricle, ohs, heart surgery

Help save CCHAforlife.org. Donate here https://www.canadahelps.org/en/pages/mission-critical-save-cchaforlifeorg/

We are fundraising to raise funds to save CCHA's website. Every year, CCHA’s website gets more than 10,000 visitors, giving people the critical information they need to know about living their best CHD life. But by July 15, there will be no website. The platform hosting CCHAforLife.org is no longer supported and, without intervention, our website will be taken offline entirely.

Help us raise $5,575 to finish development of the new website. Long term we intend to build the 'Go To'...

News
jennifer
November 1, 2023
0
heart, congenital heart disease, heart disease, heart defect, congenital heart defect, heart surgery, open heart surgery,

Virtual Congenital Heart Choir

Are you a child living with congenital heart disease in Canada? Do you like to sing? Are you looking for something fun to do inside over the long Canadian Winter?

Why not join our CHD children's choir! Brought to you by musicians from the Virtual Heart Connection (VHC) in association with the Canadian Congenital Heart Alliance (CCHA), you will learn a medley of songs and sing together with other CHD kids.

Sessions will start with vocal warm-up exercises followed by learning the song. Participants will have an optional chat time with each other at the end...

News
jennifer
September 15, 2023
0
heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

FR

This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

News
jennifer
July 25, 2023
0
Beat Retreat, heart, heart disease, ACHD, CHD, heart defect, congenital heart defect, congenital heart disease, 1 in100, camp, disability, archery, canoeing. health

Registration is now open is cancelled for 2023!

Unfortunatey the 2023 Beat Retreat camp has been cancelled due to low applications. However, we will be holding camp in 2024 so keep watch for more details this fall. 

Don't miss out on the opportunity to see old friends and make new ones!

The Canadian Congenital Heart Alliance (CCHA) along with the Beat Retreat is happy to present the 14th annual Beat Retreat camp September 7-10, 2023. 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an...

News
jennifer
May 2, 2023
0
heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease, cardiopathie congenitale

FR

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed...

News
jennifer
March 23, 2023
0
Fontan, heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awreness

Artwork above by: Kassondra Krahn @kassondrakrahn www.kassondrakrahn.com

FONTAN EDUCATION DAY 2023

The 2nd annual Fontan Education Day is coming in April.

Connect peer-to-peer with others who have undergone a Fontan surgery and their family members, ask questions, and learn!

To register https://www.eventbrite.com/e/fontan-education-day-2023-tickets-494433894087

Event Date: Sunday April 16, 2023
Event Time: 9am – 12pm (Pacific Time)
Event Location: Online via Zoom
Eligibility: All ages with Fontan surgery

Not able to attend on the day? Register thru Eventbrite link and select “Zoom...

News
jennifer
February 11, 2023
0
Illustration of Penelope

Le Canadian Congenital Heart Alliance est ravi d'annoncer que leur livre pour enfant "Penelope goes for her heart checkup" est maintenant disponible en français "Pénélope va chez le cardiologue."

Suivez Pénélope - une petite fille - alors qu'elle se rend à l'hôpital pour son "bilan cardiaque” dans ce livre magnifiquement illustré pour les enfants de 5 à 8 ans

Pour en savoir plus et télécharger le livre, visitez https://www.cchaforlife.org/penelope-goes-her-heart-checkup

ALERTE ACTIVITÉ ENFANTS !!!Pour faire partie du voyage de Pénélope, téléchargez la page de coloriage ci-dessous. Coloriez...

News
jennifer
February 2, 2023
0
Hands holding multicoloured heart puzzle Congenital Heart Disease Awareness Week February 7-14 Congénital semaine de sensibilisation aux maladies cardiaques Février 7-14 #CHD #CHDAwarenessWeek #HeartMonth #MoisDuCoeur #heart #heartdisease

As we get ready for CHD Awareness Week on February 7 we invite you share our campaign across Canada, sharing personal stories, CHD research, projects and more. We are thrilled for the return of our 5th annual #CanadaLitRed4CHD campaign showcasing monuments across Canada lit red for CHD Awareness as well as our #CHDproclamation from cities coast to coast. Be sure to use our #CCHAweraiseourhandforCHD hashtag to show your CHD support.

To show your support this CHD Awareness Week, download our Facebook and Twitter covers in English and French.

Facebook cover EN

CHD Awareness Week Social Media assets #CHD #HeartMonth #MoisDuCoeur #CHDAwarenessWeek Heart Month Mois Du Coeur #CHDAdvocacy CHD Advocacy CHD Awareness Week Social Media assets #CHD #HeartMonth #MoisDuCoeur #CHDAwarenessWeek Heart Month Mois Du Coeur #CH

Twitter cover EN...

News
jennifer
February 2, 2023
0
CCHA is back on Instagram #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #heartdefect #instagram #insta #thegram #CHDawareness

Canadian Congenital Heart Alliance is back on Instagram with our new account @CCHA4LIFE!

You may have noticed we haven`t updated our old IG in some time. We were locked out and sadly unable to recover the account. We are currently in the process of closing down our old page @cchaforlife and we hope you will follow us on this new one.

Please continue to support our CHD community by liking our posts, following our page, and turning on your notifications as you look forward to amazing content this Heart Month 2023!

You can also follow us on:

Facebook: @CCHAforlife

Twitter: @cchaforlife...

News
jennifer
February 2, 2023
0
It's Heart Month image with hands raised for Congenital Heart Disease Awareness #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #heartdefect

February is Heart Month! CCHA is so excited to bring you a month full of events, announcements, and most importantly awareness. Raise your hand if you will join us in raising CHD Awareness in support of over 250,000 Canadians living with Congenital Heart Disease.

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C'est l'image du mois du cœur avec les mains levées pour la sensibilisation aux maladies cardiaques congénitales #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #cardiopathie #heartdefect malformation cardiaque

Février est le mois du cœur ! Le CCHA est ravi de vous offrir un mois rempli d'événements, d'annonces et, surtout, de sensibilisation. Levez la main si vous vous joignez à nous pour sensibiliser la population aux cardiopathies congénitales afin de soutenir plus de 250,000 Canadiens vivant avec une cardiopathie...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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