Canadian Congenital Heart Alliance

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Board of Directors - Positions available

Interested in supporting children and adults with CHD across Canada, apply for a position on our Board of Directors

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the...

Health records

Toronto Star reporter Kristin Rushowy shining the spotlight on issue of medical records retention, a growing problem for Canadians living with CHD who had surgery as a child.

https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-kids-should-be-kept-for-life-group-urges.html

 

The Canadian Congenital Heart Alliance (CCHA) partnered with the CHEO's HALO Research Institute and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) held across Ontario in 2017.

Interested in Fearless Physical Activity? Check out our resources here Fearless Physical Activity

 

Funding provided through a grant from the Ontario Ministry of Tourism, Culture and Sport

 

Province the first in Canada to offer screening to all healthy babies  By Jennifer Chevalier, CBC News. Photo Jean Delisle/CBC

 

The announcement that Pulse Oximetry Newborn Screening is coming to Ontario is amazing news for early detection of babies born with Critical Congenital Heart Defects (CCHD).

This program will help catch upwards of 150 babies a year born with Congenital Heart Disease (CHD) but who currently leave the hospital undiagnosed. “Early detection and treatment of CHD is critical in ensuring the best possible long-term quality of life for individuals that will live with this life-long disease" stated Krista Vriend, President of the Canadian Congenital Heart Alliance (CCHA). "Leadership and progress on...

Very exciting, CCHA's Fearless Physical Activity program in partnership with CHEO is featured on CTV Ottawa!

Check out the video: http://ottawa.ctvnews.ca/video?binId=1.1166252 

 

Jennifer Graham - President

Jennifer Graham was born with a CHD - congenitally corrected transposition of the great arteries (ccTGA). Jennifer has been a part of CCHA since 2006.  She graduated from Carleton University with a B.Sc Hon in Biology and Psychology.  During her career she has held various positions including Project Manager, Computer System designer and developer, Process Re-engineering Analyst and National Trainer in the Insurance and Pharmaceutical industries.

While part of the CCHA team, she has helped organize events fundraising and social events as well as, represent CCHA at CCS...

Date: November 29, 2016 - 7:30-9:00 PM EST

Thank you to everyone who attended our 2016 Annual General Meeting.

Documents
 
2016 AGM presentation
2015 Audtied Financial Statments

PDF icon Download 2015 Audited Financial Statements.pdf (3.52 MB)

CCHA AGM Minutes 2015

PDF icon Download CCHA_AGM_Minutes_2015.pdf (94.47 KB)

Board Members 2016-2019

Download Board members 2016-2017.pdf (83.63 KB)

Survey Invitation for New CHD “Fearless Physical Activity” Events

 

CCHA wants to hear your ideas for our “Fearless Physical Activity” events!

 

CCHA needs your help to design physical activity events specifically geared towards children, youth and adults with CHD.

In order for CCHA to make these “Fearless” events as helpful and successful as possible, you are invited to complete a very brief survey asking for your opinion on the design of these events. What activities would interest you? When and for how long would you want to participate?

 

The survey will take only 5 minutes. Click on the link...

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Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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