Canadian Congenital Heart Alliance

#HeartMonth

News
jennifer
February 23, 2021
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Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

News
jennifer
February 6, 2021
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Canadian flag

    City of Edmonton Proclaiming CHD Awareness Week  City of Calgary Proclaiming CHD Awareness Week  City of Chestermere Proclaiming CHD Awareness Week

Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.

Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at info@cchaforlife.org to get involved!

 

Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales

Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...

News
jennifer
February 6, 2021
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CN Tower lit red

Iconic buildings all across Canada are lighting up red for CHD Awareness Week!

Feb 7 - High Level Bridge - Edmonton AB https://www.edmonton.ca/attractions_events/schedule_festivals_events/lig...

Feb 7 - BC Place - Vancouver BC  https://www.facebook.com/BCPlaceStadium/posts/5594016120624553

Feb 9 - Calgary Tower - Calgary AB  https://www.calgarytower.com/about/light-shows/lighting-schedules/

Feb 12-14 - London City Hall, JA Taylor building, Canada Life building and RBC Place Convention Centre - London ON

Feb 14 - CN Tower - Toronto ON https://www.cntower.ca/en-ca/home.html#earthcams

Feb...

News
jennifer
December 1, 2020
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Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

News
jennifer
February 13, 2020
0
Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

News
jennifer
February 6, 2019
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MP Marilyn Gladu recognizes February 14th as CHD Awareness Day in Statement in House of Commons

 

Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.

By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.

Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition

News
jennifer
January 28, 2019
0

2019 Faces of CHD campaign

During Heart Month 2019, we highlighted CHD stories of our members from across Canada. Thank to everyone for their stories of strength, perseverance and hope and for sharing their experience with the community of CCHA and anyone who has been touched by Congenital Heart Disease.

 

Meaghan S' story  Meaghan S' Faces of CHD story  PDF icon Download Meaghan S_Faces of CHD story.pdf (76.53 KB)

 

Rita F's story  Rita's Faces of CHD story  PDF icon Download Rita F_Faces of CHD story.pdf (72.09 KB)

 

Michelle K's story Faces of CHD Michelle's story   PDF icon Download Michelle K_Faces of CHD story.pdf (1.02 MB)

Amanda C's story CCHA Faces of CHD in Canada - Amanda  PDF icon Download Amanda C_Faces of CHD story.pdf (837.88 KB)

Shelley C's...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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