Facebook icon.Twitter icon.Youtube icon.RSS Feed.

Canadian Congenital Heart Alliance

#CHDAwareness

By Sarah Trainor, CBC

"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.

A great piece for generating awareness during...

Congratulations to Nova Scotia for being the first province to declare February 7 - 14th Congenital Heart Disease Awareness Week! Way to go!

Big thanks @Brave_HeartSS @yarrowgillis @BrigadonTweets @IWKHealthCentre and everyone involved to raise awareness for CHD and make this happen.

 

 

Thank you to Marilyn Gladu, MP (Sarnia_Lambton, ON Opposition Health Critic) for reading our statement in the House of Commons and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada.

 

https://www.facebook.com/MPMarilynGladu/videos/920094518165380/

#1in100

Hey Canada.

CCHA is challenging you to find your 1 in 100 Champion!

Share your video, picture or story of your 1 in 100 Champion on social media to help raise awareness for Congenital Heart Disease #CHD. Tag us in your post @cchaforlife on Facebook, Twitter or Instagram using the hashtags #1in100, #CHD, #CCHA.  Not on social media - no problem. You can still share your 1 in 100 Champion video, picture or story by emailing them to us at...

Health records

Toronto Star reporter Kristin Rushowy shining the spotlight on issue of medical records retention, a growing problem for Canadians living with CHD who had surgery as a child.

https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-kids-should-be-kept-for-life-group-urges.html

Jimmy Kimmel

Much love to Jimmy Kimmel as he shares the emotional and heartfelt story of his family's CHD journey with their newborn son 'Billy'', born with Tetralogy of Fallot and Pulmonary Atresia.

A story that many people living with CHD, their parents and families and friends can relate to and understand.

https://youtu.be/MmWWoMcGmo0

A huge thank you to Jimmy Kimmel for the very powerful CHD Awareness and Advocacy story!

 

See as Dr. Oz explains about Tetralogy of Fallot to Jimmy Kimmel and some great insight into the incredible teams that perform these CHD surgeries.

https://youtu.be/6yKh2hNYBYo

 

Shaun...

 

Join Team CCHA on Saturday May 27th to walk or run while raising money for the Canadian Congenital Heart Alliance (CCHA).

Come out for fun, exercise, meet other CHD patients and their families and support a worthy cause all the same time!

Online registration is now open! Join Team CCHA today.

Date: Saturday May 27th

Where: Ontario Science Centre, 770 Don Mills Road & E.T. Seton Park (Sunnybrook Parkland) located in Toronto, Ontario map

Time: 8am - 12 noon

The event features programs for people of ALL ages.  Participants have a choice of:

  • Walk: 3km or 5km;
  • Run: 5km or 10km competitive...

Annual Labatt Family Heart Centre Family Conference 2017

Saturday April 22, 2017 8:30am to 4pm

Peter Gilgan Centre for Research and Learning (PGCRL) at 686 Bay St, Toronto

This conference brings children, their families and health professionals together to share information and experiences about heart disease in children. The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development or informal support systems.

Click here to see the agenda http://www.cvent.com/events/annual-labatt-family-heart-centre-family-con...

Come by and...

Subscribe to RSS - #CHDAwareness
Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

Upcoming

Sorry, there are no posts at this time.