CCHA was LIVE with a virtual concert to raise CHD AWARENESS
One of CCHA's goals as an organization is RAISE AWARENESS of CHD! As a way to achieve our goal, on November 22nd at 5:30pm EST/6:30pm AST, we teamed up with a group of students from Saint Francis Xavier University to host a FACEBOOK LIVE Concert – Music With Hearts; 1 in 100 Journey!!
This event featured some great East Coast talent such as Russ Matthews, Tyler Mullendore, Todd Googoo, and many more! We also have some wonderful talent from individuals who live with CHD such as Shannon Durnan and Joe Bladek!! Also Kyle Tayes and...
The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE! Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:
Support initiatives such as Transition Programs, and more!
We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!
The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).
CHD is the most common birth defect, affecting 1 in 100 babies born worldwide. CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...
The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. For 7 weeks now Canadians having been living through this COVID-19 pandemic. We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future. We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...
The purpose of these transition recommendations is to support families understand the stages of Transition and support discussions with your CHD healthcare team. Transition should be personalized for each individual, in accordance with their chronological age, developmental stage and abilities. Active engagement in the transition process is vital for teens and young adults and families to prepare for a healthy life as an adult with CHD
Introduction to Health: Age 2-7 years old
Goal - Understanding their body
Transition preparation begins when your child is a toddler; coach them to...