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Canadian Congenital Heart Alliance

#CardiopathieCongenitale

CCHA year in review

Although 2020 was a tough year for us all, we at CCHA are looking back fondly on some of the incredible work we were able to do to enrich the lives of our CHD community members. Thank you to all our donors, members and volunteers who made it all possible!

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We are looking forward to all that is in store for 2021.

Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

Beat Retreat returns to CCHA

Exciting announcement from CCHA and Beat Retreat

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver “The Beat Retreat” camp.

This fun-filled four day event for adults living with congenital heart disease (CHD) will return as a program under the Canadian Congenital Heart Alliance known as the “The Beat Retreat”.

With the Beat Retreat returning as a program of CCHA, it will ensure continued financial support for the camp, allowing for stable and long term growth.  “We are...

Walk of Life 2020

 

Join Team CCHA in the 2020 Virtual Walk of Life! https://bit.ly/WOL2020TeamCCHA

The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE!  Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:

  • Awareness materials
  • Camps
  • Conferences
  • Education days 
  • Support initiatives such as Transition Programs, and more!

You will also be supporting...

Stay home save lives COVID19

 

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.

As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and
complications.


Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page.  For important informations, Q&A, resources...

Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

Giving Tuesday December 1

 

Giving Tuesday gives us the opportunity to raise CHD awareness. This year, we are reflecting back on some of our accomplishments, showing how your generous donations and support made all this possible.

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We hope we can continue to count on you to support our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support.

How will you support CHD families and CHD awareness this Giving Tuesday!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram    @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
2020 Beat Retreat camp registration

 

Registration is now open! to register click here Beat Retreat camp registration

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to build life-long frienships, share and learn from the experiences of others living with CHD. And, you’ll have an opportunity to chat with healthcare professionals in a relaxed and informal...

Canadian Congenital Heart Alliance logo

Date:       Wednesday June 24, 2020

Time:       8-9:30pm EDT

Where:    Virtual - videoconference and phone   

 

2020 AGM Documents

2020 CCHA AGM presentation  PDF iconDownload 2020 CCHA AGM Presentation.pdf (1.04 MB)

2019 CCHA AGM minutes  PDF iconDownload CCHA 2019 AGM minutes_draft.pdf (209.48 KB)

2019 CCHA Financial Statements  PDF iconDownload Canadian Congential Heart Alliance Dec 2019 - Financial Statements - Final.pdf (228.93 KB)

2020-2021 Board of Directors  PDF iconDownload 2020 CCHA Board of Directors_AGM.pdf (308.36 KB)

 

Assemblée Générale Annuelle

Date:       mecredi 24 juin 2020

Heure:     20 h à 21 h 30 HAE

Où:         visioconférence et téléphone...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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