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Canadian Congenital Heart Alliance

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Webinar

The Adult Congenital Heart Association (www.achaheart.org) has given us permission to share the fantastic webinars they’ve been offering to their members. You can watch the previously shown webinars and also register for the new ones. The “live” webinars air at a certain time and day but can also be watched afterwards. During the live airings you can type in questions to the presenter – either way you’ll learn a lot.

Enjoy, and thank you to ACHA!

Upcoming Webinars: Click here for the full 2014 webinar schedule (subject to change).

Watch Past Webinars:

2013:

Understanding and Managing Rhythm Disturbances in Adults with CHD, presented by Alison Meadows, MD, PhD

Understanding Genetic Testing and Hereditary Risk in CHD, presented by Stephanie Ware, MD, PhD, FACMG

Aging with Tetralogy of Fallot, presented by William R. Davidson, Jr., MD

What Adults Living with Ebstein’s Anomaly Need to Know, presented by Karen Stout, MD

Coping with Life’s Challenges and Changes, presented by Adrienne Kovacs, PhD, CPsych

Pulmonary Hypertension in the Adult with Congenital Heart Disease, presented by Jamil Aboulhosn, MD, FACC, FSCAI

ASD and VSD in the Adult with Congenital Heart Disease, presented by Naser Ammash, MD

Taking Charge of Your Medical Records: What Every Adult CHD Patient Should Know, presented by Paula Miller, ACHA Member Services Manager

Thriving with Congenital Heart Disease: 10 Things Every Patient Should Know, presented by Amy Verstappen, ACHA President/CEO

ACHA Advocacy Update 2013, presented by Amy Basken, ACHA Public Policy Manager

Guidelines for the Management of the Adult with Congenital Heart Disease, presented by Ruth Phillippi, ACHA Education and Outreach Manager

Life with Single Ventricle: ACHD Patients Living with a Fontan, presented by Stephen R. Crumb, DNP, AACC

2012:

Aging with Congenitally Corrected Transposition of the Great Arteries, presented by Carole Warnes, MD

Post Arterial Switch and Rastelli in the Adult Congenital Heart Patient, presented by Joseph D. Kay, MD

What Every CHD Patient Needs to Know About Finding ACHD Care, presented by ACHA Member Services Manager Paula Miller and ACHA Research Manager Ann Gianola

Advocating in August by Visiting your Legislators in Their Home Offices, presented by Amy Basken, ACHA Advocacy Coordinator

Social Security Disability and the Compassionate Allowance Program in the Adult Congenital Heart Community, presented by Jamillah Jackson

Lifestyle and Cardiovascular Health in the Adult Congenital Heart Disease Patient, presented by Jorge Alegria, MD

Living with Truncus Arteriosus, presented by Michael A. McConnell, MD

Coping with Anxiety and Depression for ACHD Patients, presented by Adrienne Kovacs, PhD

Imaging Techniques in ACHD Care, presented by Craig Broberg, MD

Celebrate and Motivate – Lobby Day 2012, presented by Amy Basken, ACHA Advocacy Coordinator

Valve Replacement in the Adult Congenital Heart Patient, presented by Yuli Kim, MD, Matt Gillespie, MD, and Stephanie Fuller, MD

Eisenmenger Syndrome in the Adult Congenital Heart Patient, presented by Curt J. Daniels, MD, FACC (This webinar was made possible in part by an unrestricted educational grant from Actelion.)

Post Mustard and Senning in the Adult Congenital Heart Patient, presented by Gary D. Webb, MD

2011:

The Adult Congenital Heart Patient Living with Bicuspid Aortic Valve, presented by Jorge Alegria, MD

Managing Holiday Stress, presented by Jamie Jackson, PhD

Patient-Centered Care and Outcomes, presented by Ann Gianola, MA, ACHA Research Manager

Aging with Tetralogy of Fallot, presented by Naser Ammash, MD

Parlez-Vous Medicinese? Talking with Your Doctor When You’re Speaking Different Languages, presented by Ruth Phillippi, MS

Advocating in August: Visiting Your Legislators in Their Home Office, presented by Amy Basken, ACHA Advocacy Coordinator

Women with Congenital Heart Disease: Understanding the Challenges of Pregnancy, presented by Dr. Candice Silversides

Keep the Beat: Identifying and Managing Rhythm Problems, presented by Dr. James Perry

ACHD, Mental Health, and Quality of Life: What Does the Data Say?, presented by Dr. Philip Moons

A Walk Through Our Website, presented by Terri Schaefer, ACHA Communications Manager

ACHA Advocacy Update, presented by Amy Basken and Brian Altman

Research 101: Why Should We Care?, presented by Ann Gianola, MA, ACHA Research Manager

Pulmonary Hypertension in the Adult Congenital Heart Patient, presented by Michael Landzberg, MD, FACC, and Disty Pearson, PA-C

2010:

Surviving and Thriving During the Holidays, presented by Paula Goldberg, PA-C

ACHA 101, presented by Paula Miller and Amy Verstappen

Webinar on IMproving Pediatric and Adult Congenital Treatment (IMPACT), a new, national data registry developed by the American College of Cardiology, presented by Gerard R. Martin, MD, FAAP, FACC

Exercise and the ACHD Patient, presented by Michael McBride, PhD

Summer Lobbying for CHD Advocates, presented by Amy Basken

Pregnancy & Congenital Heart Disease, presented by Carole A. Warnes, MD, FRCP

The Adult Fontan Patient, presented by Michael E. McConnell, MD

The Healthcare Reform Act and the Congenital Heart Community, presented by Brian Altman and Disty Pearson

Adoption and the ACHD Patient, presented by Amanda Bone

How to Have Fun Saturday Night without Waking Up in the ER Sunday Morning, presented by Karen Stout, MD

Contraception and the ACHD Survivor, presented by Disty Pearson, PA-C

H1N1 and the ACHD Patient, presented by Dr. Minisha Patel and Dr. Tom Shimabukuro

The Top Ten Things Every ACHD Patient Should Know, presented by Amy Verstappen

Effective Summer Lobbying Webinar, presented by Brian Altman

Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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