The Canadian Congenital Heart Alliance launched their children's book "Penelope goes for her heart checkup" in February 2021.
This illustrated book for children ages 5-8, follows Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before their ‘heart checkup’ will assist in preparing them for their visit with the 'Heart Team'.
For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.
What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...
Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.
CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.
88% of adults living with #CHD have experienced mental health challenges at some point.
75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?
From 2016 to 2018 the Canadian Congenital Heart Alliance (CCHA) partnered with CHEO's HALO Research Institute, and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) across Ontario through funding from the Province of Ontario. Each season, Fearless Physical Activity events were held in London, Ottawa, Thunder Bay or Sudbury and Toronto for all ages and all levels of ability and experience! These events were very successful in creating new connections amongst families living with...