Canadian Congenital Heart Alliance

Recent Posts

BC PACH Clinic Patient Education Conference

On Saturday May 7th, 2016 the BC PACH (Pacific Adult Congenital Heart) clinic will be hosting a patient education conference: "Unique Hearts, Unique Lives" - Information for navigating life as an adult with Congenital Heart Disease.

 

Unique Hearts, Unique Lives - Information on navigating adult life with CHD - BC PACH clinic patient education day

Labatt Family Heart Center Family Conference 2016

The conference brings children, their familles and health professional together to share information and experiances about heart disease in children.

The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development of informal support system. 

Labatt Family Heart Center Family Conference 2016 - Presented by Sick Kids
News
shelagh
February 8, 2016
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The 2016 Beat Retreat camp information is now available! To find out more about the camp and to print the application and medical forms please click HERE.

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shelagh
January 2, 2016
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Adults with congenital heart disease (ACHD) may be at increased risk for post-traumatic stress disorder (PTSD), new research suggests...

To read the article please click HERE. 

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shelagh
December 3, 2015
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Congratulations to Dr. Gary Webb for being awarded a Lifetime Achievement Award from the International Society for Congenital Heart Disease!

Beginning in 1980, Dr. Webb was codirector, and then director of the Toronto Congenital Cardiac Center for Adults, the first such ACHD clinic in the world. He was the founding president of the Canadian Adult Congenital Heart Network, and he was the founding president of the International Society for Adult Congenital Heart Disease.

To read the announcement please click HERE.

 

News
shelagh
November 25, 2015
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Adults with congenital heart defects at considerably higher risk of stroke 

Wednesday, 25 Nov 2015 12:31 

A study published in Circulation has shown adults with congenital heart defects to have much higher rates of stroke, compared to the general population.

The researchers from McGill University, Montreal, Quebec, Canada analysed stroke data on 19,638 congenital heart disease patients between the ages of 18 and 64, and compared them with that of the general population of Quebec, Canada. Their aim was to find the frequency, risk and strongest predictors of stroke.

Their results include:

  • Stroke...
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shelagh
November 12, 2015
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7th annual Beat Retreat brings adult CHD patients and professionals together

What has 36 hearts, 72 legs, and more enthusiasm than you can shake a stick at? Give up? The Canadian Congenital Heart Alliance’s 7th annual Beat Retreat, held September 17-20, 2015.

The Beat Retreat is a fun-filled, four-day annual event for adults with congenital heart disease (ACHD).  This year’s retreat – the biggest to date – drew together 27 adult congenital heart disease (CHD) patients, two caregivers, and seven health care professionals from Southern Ontario, Quebec and even Alberta.

While at camp, attendees...

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shelagh
October 3, 2015
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Would you like to create a wallet-size health passport in case of emergency? You can now use the SickKids MyHealth Passport to create a CHD-specific form with all of your pertinent health and contact information. Just click HERE and use the drop-dow menu to select "Congenital heart disease" and then fill out the information and keep it in your wallet or purse.

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shelagh
April 21, 2015
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Middle-aged congenital heart disease survivors may need special care 

American Heart Association Scientific Statement 

 

Statement Highlight

  • For the first time, the American Heart Association has made recommendations for treating people older than 40 with congenital heart disease.

Embargoed until 3 p.m. CT/4 p.m. ET Monday, April 20, 2015 

DALLAS, April 20, 2015 — For the first time, the American Heart Association has issued recommendations for healthcare providers treating people older than 40 with congenital heart disease.

“People born with congenital heart disease are living longer and fuller...

News
shelagh
April 6, 2015
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A Prescription for Change – Making Affordable Medicine a Priority

by Alison Lawton

When we launched the Access Our Medicine Initiative on World Health Day last year I didn’t know if anyone would respond.

We knew that the price of medicine was rising for life-changing medicines with devastating consequences for everyone, around the globe. We learned of people choosing between food and medicine, being pushed into poverty and even dying because they couldn’t afford medicine they needed.

But I also knew that for many people the issue of access to affordable medicine just isn’t top of mind until...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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