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Canadian Congenital Heart Alliance

April 2014

Browse an archive of all of the content on the site.

This Globe and Mail article was published on March 23, 2014. It discusses the importance of transition programs from paediatric to adult hospital for patients with chronic conditions. To read the article please click HERE.

Congenital heart defects (CHD) are the most common birth defect affecting one in 100 children worldwide. The cause of heart defects is understood in only about 20 per cent of cases, but the other 80 per cent remain unknown. In a novel study led by The Hospital for Sick Children (SickKids), researchers offer insight into the cause of a subtype of congenital heart defects called atrioventricular septal defects (AVSDs). The team sequenced the DNA of patients and families with this type of heart defect and found several mutations in a gene, NR2F2, that is very important for heart development.


This is a great article published in the April/May 2014 issue of Cardiology News, a UK publication. Dr. Liz Morton, a CHD patient and psychologist, writes about the impact of living with congenital heart disease.


Click HERE to access the article, which starts on page 6.

Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.


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