Canadian Organizations

Canadian Adult Congenital Heart Network (CACHnet) – Glossary of Terminology

CACHnet Message Board

aboutkidshealth.ca (great information aouut the types of CHD)

Heart Defects Society of Windsor and Essex County

Braveheart Support Society

Wyatt’s Warriors

Heart & Stroke Foundation: Congenital Heart Disease

Heart & Stroke Foundation: Heart & Soul: A guide to congenital heart disease (downloadable guide in PDF)

The Canadian Association of Cardio-Pulmonary Technologists

Mikey Network

www.sasklittlehearts.com

Congenital Heart Surgeons’ Society Data Center

The Heart Beats Children’s Society of Calgary

US Organizations

Adult Congenital Heart Association (US)

series of informative WEBINARS (eg. ACHD, Mental Health, and Quality of Life: What Does the Data Say?; Research 101: Why Should We Care?; Pulmonary Hypertension in the Adult Congenital Heart Patient; Surviving and Thriving During the Holidays; Exercise and the ACHD Patient; Pregnancy & Congenital Heart Disease, and more…

Congenital Heart Information Network

CongenitalHeartDefects.com

HeartCenter Online for Patients

Camp Odayin

UK and International Organizations

Grown Up Congenital Heart Patients Association (UK)

International Society for Adult Congenital Cardiac Disease

- Glossary for Adult Congenital Heart Disease

Congenital Heart Surgeons’ Society Data Center

Articles about Adult CHD

Challenges in the Care of Adult Patients with Congenital Heart Defects – article by Dr. Gary Webb, published in Heart, 2003.

Mechanism and Therapy of Cardiac Arrhythmias in Adults with Congenital Heart Disease – article published in The Mount Sinai Journal of Medicine, July 2005.

Caring for your congenital heart defect as an adult – Mayo Clinic