The Adult Congenital Heart Association (www.achaheart.org) has given us permission to share the fantastic webinars they’ve been offering their members. You can watch the previously shown webinars and also register for the new ones. The “live” webinars air at a certain time and day but can also be watched afterwards. During the live airings you can type in questions to the presenter – either way you’ll learn a lot.
Enjoy, and thank you to ACHA!
Upcoming Webinars:
Click here for our webinar schedule through May 2012 (subject to change).
Valve Replacement in the Adult Congenital Heart Patient
Monday, February 6, 2012, 7-8 pm EST
Register for the webinar here.
About 1 in 5 adults with congenital heart disease (ACHD) are hospitalized for surgery. Most surgical procedures are for valve replacements. If you are an ACHD patient facing a valve replacement, you will want to attend this webinar. You will learn why you might need one and what the surgical and percutaneous (catheter) options are. The focus will be on valve replacement in tetralogy of Fallot.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenters:
Yuli Kim, MD
Matt Gillespie, MD
Stephanie Fuller, MD
Celebrate and Motivate – Lobby Day 2012
Monday, February 13, 2012, 7-8 pm EST
Register for the webinar here.
Help ACHA and Mended Little Hearts celebrate our advocacy successes in 2011 and motivate our members of Congress to do more! Whether a seasoned veteran advocate, or wanting to learn more about what our Lobby Day is all about, join us for this webinar. Participants will learn about several exciting accomplishments in 2011 and get an update on our Lobby Day priorities for 2012. Plus, learn how you can get involved, whether from the comfort of your own home, or by visiting your lawmakers in Washington, D.C. If you are planning on attending Lobby Day or even just thinking about it, this is an excellent opportunity to learn more about our issues and ask questions about this exciting event.
Presenter:
Amy Basken
ACHA Advocacy Coordinator
Watch Past Webinars:
Eisenmenger Syndrome in the Adult Congenital Heart Patient
Monday, January 23, 2012, 7-8 pm EST
Are you a congenital heart patient who is cyanotic (blue)? Are your fingernails or toenails swollen or rounded? Have you been told you have high blood pressure in your lungs? Do you have too many red cells in your blood? Have you been told you have Eisenmenger syndrome? If you have any of these symptoms or have Eisenmenger syndrome, you won’t want to miss this webinar. Come and hear Dr. Curt Daniels, national adult congenital heart disease expert, discuss what causes Eisenmenger syndrome and how it is diagnosed, as well as available treatments and steps you can take to avoid complications and lead as productive a life as possible.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenter:
Curt J. Daniels, MD, FACC
Are you a medical professional? Click here for a printable flyer for this webinar to hang up at your clinic.
Post Mustard and Senning in the Adult Congenital Heart Patient
Tuesday, January 17, 2012, 7-8 pm EST
Are you an adult with complete Transposition of the Great Arteries (TGA) who has had a Senning or Mustard procedure? If so, you will want to attend this webinar. Dr. Gary Webb, noted ACHD cardiologist, will discuss the four main issues that might show up after these procedures. He will also tell you why close observation by an ACHD expert is important and share steps you can to take to lead as productive a life as possible.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenter:
Gary D. Webb, MD
Are you a medical professional? Click here for a printable flyer for this webinar to hang up at your clinic.
The Adult Congenital Heart Patient Living with Bicuspid Aortic Valve
Tuesday, December 6, 2011, 7-8 pm EST
Have you ever been told that the aortic valve in your heart has only two leaflets, instead of three? Have you wondered what this means and how it can be treated? To help you understand more about bicuspid aortic valves, attend this webinar to hear Dr. Jorge Alegria, a leading ACHD cardiologist, describe what a bicuspid aortic valve is, recommendations for treatment, and how to lead as productive a life as possible with this congenital heart defect.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenter:
Jorge Alegria, MD
Managing Holiday Stress
Thursday, November 10, 2011, 7-8 pm EST
Are you worried about finding time for yourself during the upcoming holiday season? Are you so busy giving to others that you don’t enjoy the festivities? Ever wonder how stress affects you? If so, you need to attend this webinar. You will learn all about stress, simple ways to take care of yourself and manage your stress, and how stress management helps you to stay healthy while improving your enjoyment of the holidays.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenter:
Jamie Jackson, PhD
Patient-Centered Care and Outcomes
Thursday, October 27, 2011, 7-8 pm ET
As an ACHD patient, have you ever wondered whether you are receiving the best medical care? Do you want to be a partner in planning your health care? Interested in learning what questions your doctor should be asking about your patient experience? If so, you won’t want to miss this webinar. Come hear ACHA’s research manager, Ann Gianola, talk about patient-centered care and help you understand what you can do to play a major role in planning your health care.
This webinar was made possible in part by an unrestricted educational grant from Actelion.
Presenter:
Ann Gianola, MA
ACHA Research Manager
Aging with Tetralogy of Fallot
Thursday, September 15, 2011, 7-8 pm ET
Are you an adult living with Tetralogy of Fallot? Did you have a Blalock-Taussig, Potts or Waterston shunt as a young child? Have you had a total repair or had your pulmonary valve replaced? If so, you will want to attend this webinar to learn how to best optimize your long-term health and how to lead as productive a life as possible. Dr. Naser Ammash, noted ACHD cardiologist, will discuss all the pertinent issues that a patient or a family member or friend of a patient with repaired Tetralogy of Fallot will want to know.
Presenter:
Naser Ammash, MD
Parlez-Vous Medicinese? Talking with Your Doctor When You’re Speaking Different Languages
Tuesday, August 16, 2011, 7-8 pm ET
Do you sometimes leave your doctor’s appointment feeling confused and frustrated? Does it seem like you and your doctor speak different languages? Then you don’t want to miss this webinar. Come and learn more about the differences in how doctors and patients think about CHD and how to talk with your doctor and feel like you’re on the same team.
Presenter:
Ruth Phillippi, MS
Advocating in August: Visiting Your Legislators in Their Home Office
Tuesday, August 2, 2011, 7-8 pm ET
Are you eager to get involved in sharing your story to make a difference? Interested in visiting your legislators in your own backyard? Summer Recess in August is hardly playtime for legislators as they return to their home district. Instead, this is an excellent chance to connect with their in-district office. Join Amy Basken, ACHA Advocacy Coordinator, to learn more about this opportunity to advocate on behalf of congenital heart disease. This webinar will offer an update on our current advocacy goals and provide tips for a successful visit. While this webinar is geared toward advocates participating in summer visits, it is a great way to learn more about the ACHA advocacy program.
Presenter:
Amy Basken, ACHA Advocacy Coordinator
Women with Congenital Heart Disease: Understanding the Challenges of Pregnancy
Thursday, July 28, 2011, 7-8 pm ET
Are you an adult with congenital heart disease who wants to have a baby? If so, come and hear Dr. Candice Silversides, international expert on pregnancy and heart disease, talk about what to expect when you become pregnant—the challenges and the management strategies for a successful pregnancy. Internet educational tools for women with heart disease and pregnancy will also be presented.
Presenter:
Dr. Candice Silversides
Keep the Beat: Identifying and Managing Rhythm Problems
Wednesday, July 27, 2011, 7-8 pm ET
Are you an ACHD patient with a history of palpitations? Have you had an ablation or surgery for them or do you take daily medications to control them? If you have experienced any of these measures or if you have a pacemaker, you won’t want to miss this webinar. Mark your calendars to hear Dr. James Perry, heart rhythm expert, discuss the causes of palpitations and how they can be treated.
Presenter:
Dr. James Perry
ACHD, Mental Health, and Quality of Life: What Does the Data Say?
Monday, June 27, 2011, 12-1 pm ET
Have you ever wondered about the quality of life in adults living with congenital heart disease (CHD)? While many of these types of studies have been published, different approaches may have played a role in the results. Some studies found that the quality of life in persons with congenital heart disease is better than that of healthy individuals. This finding may seem the opposite of what we thought. Dr. Moons will talk about the findings of the quality of life studies of adult living with CHD. If you want more information, you don’t want to miss this webinar!
Presenter:
Dr. Philip Moons
Professor in Nursing Science
Center for Health Services and Nursing Research
Catholic University
Leuven, Belgium
A Walk Through Our Website
Tuesday, June 7, 2011, 7-8 pm ET
The Adult Congenital Heart Association (ACHA) website is a resource for patients, families and health care providers. Join ACHA Communications Manager Terri Schaefer as she takes webinar attendees on a tour of the new website, at www.achaheart.org, pointing out pertinent information and how to use popular areas, such as the Program Directory, advocacy webpages, resource section and Discussion Forum.
Presenter:
Terri Schaefer
Communications Manager
Adult Congenital Heart Association
ACHA Advocacy Update
Thursday, March 3, 2011, 7-8 pm ET
ACHA is a true champion in advocating for the lifelong needs of those living with congenital heart disease (CHD). Join Amy Basken and Brian Altman as they tell you about the accomplishments of the past year with the passage of the Congenital Heart Futures Act and recognition by key federal agencies, as well as current projects, and what you—the voice of CHD—can do to continue to improve and prolong the lives of those living with CHD through advocacy.
Presenters:
Amy Basken
Advocacy Coordinator
Adult Congenital Heart Association
Brian Altman
Drinker Biddle & Reath, LLP
Research 101: Why Should We Care?
Thursday, February 17, 2011, 7-8 pm ET
Presenter:
Ann Gianola, MA
Research Manager
Adult Congenital Heart Association
Do you understand the process of medical research? Have you ever wanted to be a volunteer in a research study? Do you want to know how research impacts ACHD? If so, you won’t want to miss this webinar. Ann Gianola, ACHA’s Research Manager, will answer these questions and more. Plus, she’ll update attendees about ACHA’s current research projects.
Pulmonary Hypertension in the Adult Congenital Heart Patient
Tuesday, January 18, 2011, 7-8 pm ET
Presenters:
Michael Landzberg, MD, FACC
Founder and Director Boston Adult Congenital Heart (BACH) and Pulmonary Hypertension Service
Children’s Hospital Boston
Boston, MA
Disty Pearson, PA-C
Senior Clinician in the BACH and Pulmonary Hypertension Service
Children’s Hospital Boston
Boston, MA
Are you a congenital heart patient who has been told you have pulmonary hypertension (PH), pulmonary arterial hypertension or high blood pressure in your lungs? Would you like to learn more about what that means? If so, come and hear national PH experts, Dr. Michael Landzberg and Disty Pearson, PA-C, discuss the types and causes of pulmonary hypertension, the available treatments and steps you can take to lead as productive a life as possible.
Surviving and Thriving During the Holidays
Wednesday, December 15, 2010, 7-8 pm ET
Presenter:
Paula Goldberg, PA-C,
Adult Congenital Heart Program
Children’s National Medical Center
Washington, DC
Do you find the holidays stressful? For stress management and nutrition tips for the holidays, tune in and learn how to identify and manage your holiday stressors. Come hear Paula Goldberg, PA-C, discuss tips for surviving and thriving in the season! A question and answer session will follow.
ACHA 101
Wednesday, November 10, 2010, 7-8:00pm ET
Presenters:
Paula Miller, ACHA Member Services Manager
Amy Verstappen, ACHA President/CEO
This webinar offered more information about ACHA’s online, print, and in-person educational and support opportunities. Attendees learned about our Heart to Heart programs, including our Heart to Heart Ambassadors, Congenital Heart Walks, the upcoming 2011 Conference and recent advocacy efforts.
Webinar on IMproving Pediatric and Adult Congenital Treatment (IMPACT), a new, national data registry developed by the American College of Cardiology
Tuesday, September 28, 2010, 7-8:00pm ET
Presenter:
Gerard R. Martin, M.D., F.A.A.P., F.A.C.C.
Senior Vice President, Center for Heart, Lung and Kidney Disease
C. Richard Beyda Professor of Cardiology
Co-Director, Children’s National Heart Institute
Professor of Pediatrics, The George Washington University Medical Center
Exercise and the ACHD Patient
Tuesday, August 31, 2010, 7-8:00pm ET
Presenter:
Michael McBride, PhD
Director of Exercise Physiology, Children’s Hospital of Philadelphia
This webinar addressed how exercise and physical activity might impact the ACHD patient.
Summer Lobbying for CHD Advocates
Monday, August 2, 2010, 7-8:00pm ET
Presenter:
Amy Basken, ACHA Advocacy Staffer
This webinar addressed summer lobbying. Advocating for congenital heart defects occurs all year long. The webinar provided information on how to effectively advocate for legislation that benefits the congenital heart community.
Pregnancy & Congenital Heart Disease
Tuesday, July 27, 2010, 7-8:00pm ET
Presenter:
Carole A. Warnes, MD, FRCP
Mayo Clinic
This webinar addressed pregnancy in the CHD patient. Dr. Carole Warnes discussed the effects of pregnancy on the heart, the importance of a team approach to a successful pregnancy and ways the pregnant CHD patient can take care of her heart and her unborn child.
The Adult Fontan Patient
Tuesday, May 25 , 2010, 7-8:00pm ET
Presenter:
Michael E. McConnell, M.D.
Sibley Heart Center – Children’s Healthcare of Atlanta
Associate Professor of Pediatrics
Assistant Professor of Medicine
Emory University School of Medicine
This webinar addressed adults living with Fontan. The challenges of living with Fontan and how to best optimize long-term health were discussed. Long-term complications of the Fontan circulation were also described.
The Healthcare Reform Act and the Congenital Heart Community
Monday, May 10, 2010, 7-8:30pm ET
Presenters: Brian Altman and Disty Pearson
This webinar addressed areas of the Health Care Reform Act that specifically affect congenital heart patients of all ages as well as CHD healthcare providers. Topics covered included new provisions on coverage extensions for young adults, changes to pre-existing condition rules, and provisions for workforce development.
Adoption and the ACHD Patient
Wednesday, April 14, 2010, 7-8pm ET
Presenter: Amanda Bone
Outreach Coordinator
MLJ Adoptions
This webinar discussed the adoption process and how you can adopt while having congenital heart disease. International and domestic adoption were discussed.
How to Have Fun Saturday Night without Waking Up in the ER Sunday Morning
Friday, March 12, 2010, 8-9pm EST
Presenter: Karen Stout, MD
Director, Adult Congenital Heart Disease Program
University of Washington and Seattle Children’s Hospital
The webinar will be an opportunity to review some of the cardiac concerns that can arise with social gatherings or parties, specifically those activities that may result in cardiac arrhythmias or other acute symptoms. Some tactics for minimizing the likelihood of developing acute symptoms while still having a good time will be reviewed, as well as a discussion of avoiding behaviors that may also have long term consequences (beyond ending up on YouTube).
Contraception and the ACHD Survivor
Thursday, February 11, 2010, 7-8pmEST
Presenter: Disty Pearson, PA-C
Senior Physcian Assistant, Boston Adult Congenital Heart Service
Have questions about contraception? Disty Pearson has spoken nationally on issues of contraception and how they affect the ACHD community. She will give an overview of the contraceptive challenges and choices for the ACHD survivor. Starting from the importance of understanding the various obstacles to education of contraception, Disty will review the many issues facing contraceptive choices. Why, for example, the ACHD cardiologist must discuss issues of birth control with their patients when it is not really fall into the category of cardiology (though it may be a matter of the “heart”). What are the different contraceptive options? Why do some pose more risk for the ACHD patient than others? What are the facts about estrogen and who should not use contraceptives containing estrogens? Who can use an IUD safely?
H1N1 and the ACHD Patient
Tuesday, November 17, 7 – 8pm
Presenters: Dr. Minisha Patel
Cardiology Fellow at Children’s Healthcare of Atlanta
Dr. Tom Shimabukuro
Pandemic Influenza Vaccine Coordinator
Dr. Patel and Dr. Shimabukuro address the H1N1 flu virus in reference to people with congenital heart disease. Each is able to give their own expert view on H1N1. Covered are the basic “need-to-know” facts and the more complicated issues about H1N1 as it relates to those with CHD. Anyone concerned about H1N1 should watch this presentation, especially those with CHD.
The Top Ten Things Every ACHD Patient Should Know
Thursday, August 13, 7 – 8:30 pm
Presenter: Amy Verstappen
ACHA President/CEO
About the Webinar
ACHA President/CEO Amy Verstappen presents the top ten tips she sees as essential for every Congenital Heart Defect (CHD) survivor. Based both on her ACHA leadership experience and her own personal journey negotiating her complex CHD, the webinar covers topics ranging from how to find quality care, incidence data and tips on how to explain what you have. Amy also discusses the latest developments in national Adult CHD advocacy efforts and how every ACHA member can become involved. Although directed primarily to CHD patients, family members and healthcare professionals are also encouraged to view the webinar if interested.
Effective Summer Lobbying Webinar
Monday, July 6, 7 – 8 pm
Presenter: Brian Altman
ACHA Board of Directors
ACHA Public Policy Committee Co-Chair
Recess isn’t just for kids; it’s also for members of Congress. This webinar is designed for those who wish to lead an ACHA Summer Lobby Day delegation. This webinar will provide information on how to effectively advocate for legislation that benefits the congenital heart community. The advocacy efforts described will focus on working with your U.S. Representative and Senators while they are at home, working in your local community.