Canadian Organizations
Canadian Adult Congenital Heart Network (CACHnet)
- Glossary of Terminology
CACHnet Message Board
Heart2Heart Cardiac Camp
Amanda's Lemonade Stand (young girl's annual fundraising inititiave for Heart & Stroke)
Heart Defects Society of Windsor and Essex County
Heart & Stroke Foundation: Congenital Heart Disease
Heart & Stroke Foundation: Heart & Soul: A guide to congenital heart disease (downloadable guide in PDF)
 
US Organizations
Adult Congenital Heart Association (US)
-The 32nd Bethesda Conference Guidelines - Highlights for the Patient
Congenital Heart Information Network
CongenitalHeartDefects.com
HeartCenter Online for Patients
 
UK and International Organizations
Grown Up Congenital Heart Patients Association (UK)
International Society for Adult Congenital Cardiac Disease
- Glossary for Adult Congenital Heart Disease

Articles about Adult CHD

Challenges in the Care of Adult Patients with Congenital Heart Defects - article by Dr. Gary Webb, published in Heart, 2003.
Mechanism and Therapy of Cardiac Arrhythmias in Adults with Congenital Heart Disease - article published in The Mount Sinai Journal of Medicine, July 2005.

Caring for your congenital heart defect as an adult - Mayo Clinic

 

Presentations from 2006 Adult Congenital Heart Defect Patient Conference
Opening Remarks, by Dr. Erwin Oechslin 

Congenital Care in Canada and the World, by Dr. Gary Webb

Coping with your Heart Condition, by Adrienne Kovacs, Ph.D., C.Psych.
Why Exercise? by Arwa Saidi
Congenitally Corrected Transposition of the Great Arteries, by Dr. Khalid Al Najashi
Transposition of the Great Arteries: Arterial Switch, by Dr. Laura Dos-Subira