Beat Retreat — Registration deadline moved to September 3! Spots still available, but hurry!

The deadline for registering for the 2nd annual Beat Retreat is fast approaching. There are still spots available, but we need to receive your application by September 3. Please note that this deadline is one week earlier than we first announced. That’s because the camp where the “camp retreat” is held has asked us to confirm the number of participants by September 3.

The Beat Retreat will be held September 17-19 at beautiful Camp Quin-mo-lac. The goal of the retreat is give adults with congenital heart defects (CHD) an opportunity to benefit from — and enjoy — a true “camp experience”. As a Beat Retreat “camper”, you’ll have an opportunity to enjoy a traditional camp experience (complete with campfires, canoeing, climbing wall, initiatives course, etc. ) — all geared to your physical ability and comfort level, and with plenty of “down time” to re-energerize and socialize. The cost to you is just $50, including accommodation, meals and activities. That’s a real deal for a weekend filled with fun!

Click on the Beat Retreat link for more information.

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The next CCHA meeting will be held on September 15 at 7:00 p.m.

The next CCHA meeting will be held on September 15 at 7:00 p.m.

Who: for those who want to actively involved with CCHA.

Where: Toronto General Hospital – 1st floor Eaton Wing – Room 441. The Toronto General Hospital is on University Avenue and Gerrard St., right across the street from Sick Kids. To get to the meeting room, take the Eaton elevators (using the East elevators) – to the first floor. Go through the glass doors toward the library and it’s right there.

When: September 15, 2010 7:00 p.m.

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CCHA and Ontario Place offer discounted Ontario Place Play All Day Passes®

When you purchase your Play All Day Pass ® online, you save over 30% off the regular price and with each Play All Day Pass ® bought online, $5 will go directly to Canadian Congenital Heart Alliance.

Click on the link https://secure5.ontarioplace.com/ and enter the following information

Enter Username: 52837 Enter Password: fun

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Six adult patients speak about living with CHD (turn up the volume!)

We made this short video at the May 2010 patient conference.

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U.S. documentary: Heart of the Matter

This video is the pilot for the U.S. documentary The Heart of the Matter,  which is scheduled for completion by Winter 2011.

Click HERE to view it.

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2009 Year in Review

We’re in the second week of December and I still haven’t come to terms with the fact that there’s a light dusting of snow on the ground and summer – or what was supposed to be summer – is actually over.

But the “holiday” tunes I keep hearing (“pa rum pum pum pum…”) have convinced me that the end of another year is approaching. Over the last few days we’ve spent time reflecting on what CCHA has accomplished in 2009 and have created a newsletter of “highlights” to keep you up to date.

Please click HERE to read what’s been keeping us busy in 2009.

All of us at CCHA wish you a very happy holiday and we are counting on 2010 to bring new opportunities to help CHD patients live longer, healthier lives.


All the very best,

Shelagh Ross – VP & Communications Chair
Canadian Congenital Heart Alliance (CCHA)
communications@cchaforlife.org
www.cchaforlife.org

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Clinical Trial Alert

U.S. Clinical Trial Seeks Patients with Congenital Heart Valve Disease for Minimally-Invasive Pulmonic Valve Replacement.

For more information please click HERE.

If you have further questions, please contact

Lynn C. Edwards
Senior Director, Edwards Lifesciences
(949) 250-6857
Lynn_Edwards@edwards.com

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